Overview
When attorney Chris Hansen learned thatĀ the U.S. government was issuing patentsĀ for human genes to biotech companies, hisĀ first thought was, How can a corporation ownĀ what makes us who we are? Then he discoveredĀ that women were being charged exorbitantĀ fees to test for hereditary breast and ovarianĀ cancers, tests they desperately neededāall becauseĀ Myriad Genetics had patented the famousĀ BRCA genes. So he sued them.
Jorge L. Contreras, one of the nationās foremost authorities on human genetics law, has devoted years to investigating the groundbreaking civil rights case known as AMP v. Myriad. In The Genome Defense Contreras gives us the view from inside as Hansen and his team of ACLU lawyers, along with a committed group of activists, scientists, and physicians, take their one-in-a-million case all the way to the U.S. Supreme Court. Contreras interviewed more than a hundred key players involved in all aspects of the caseāfrom judges and policy makers to ethicists and genetic counselors, as well as cancer survivors and those whose lives would be impacted by the decisionāexpertly weaving together their stories into a fascinating narrative of this pivotal moment in history.
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The Genome Defense is a powerful and compelling story about how society must balance scientific discovery with corporate profits and the rights of all people.
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This book title, The Genome Defense (Inside the Epic Legal Battle to Determine Who Owns Your DNA) - 9781643753249, ISBN: 9781643753249, by Jorge L. Contreras, published by Algonquin Books (October 18, 2022) is available in paperback. Our minimum order quantity is 25 copies. All standard bulk book orders ship FREE in the continental USA and delivered in 4-10 business days.
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